J. Shi
Publications
A Taxonomy of Mental Health and Technology Needs for Alzheimer's and Dementia Caregivers
Family members caring for individuals with Alzheimer's disease and related dementias (AD/ADRD) provide the foundation of long-term care worldwide. In 2023, more than 11 million U.S. family and friends contributed 18 billion hours of unpaid care, often at the cost of their own physical and mental health. These informal caregivers -- also referred as the "invisible second patients" -- experience elevated rates of mental health problems. Yet research commonly reduces their complex psychosocial experiences to a single construct of caregiver burden, obscuring which specific needs are unmet or effectively supported. At the same time, digital and AI-enabled technologies are rapidly expanding, from smartphone apps and videoconferencing to sensor platforms and AI chatbots. However, the absence of shared frameworks across medicine, psychology, and technology research limits cumulative progress. This study introduces a Caregiver Mental Health and Technology Taxonomy that systematically links AD/ADRD caregiver needs with corresponding classes of technology-based interventions. Drawing from an interdisciplinary literature review and two qualitative studies with caregivers, the taxonomy identifies mismatches between caregiver priorities and existing technological support, highlights under-served domains such as relational strain and compassion fatigue, and proposes design directions for adaptive, responsive systems. The framework offers a shared vocabulary to guide clinicians, researchers, and technology designers in developing more person-centered and clinically grounded innovation in dementia care.
Designing KRIYA: An AI Companion for Wellbeing Self-Reflection
Most personal wellbeing apps present summative dashboards of health and physical activity metrics, yet many users struggle to translate this information into meaningful understanding. These apps commonly support engagement through goals, reminders, and structured targets, which can reinforce comparison, judgment, and performance anxiety. To explore a complementary approach that prioritizes self-reflection, we design KRIYA, an AI wellbeing companion that supports co-interpretive engagement with personal wellbeing data. KRIYA aims to collaborate with users to explore questions, explanations, and future scenarios through features such as Comfort Zone, Detective Mode, and What-If Planning. We conducted semi-structured interviews with 18 college students interacting with a KRIYA prototype using hypothetical data. Our findings show that through KRIYA interaction, users framed engaging with wellbeing data as interpretation rather than performance, experienced reflection as supportive or pressuring depending on emotional framing, and developed trust through transparency. We discuss design implications for AI companions that support curiosity, self-compassion, and reflective sensemaking of personal health data.